Toren Theiss is 11 years old. He’s an incredibly active young man who plays soccer, ski races and though he wouldn’t brag about it, does quite well at both. It wasn’t until a day in August two years ago when he was walking towards his mother Jill, that she realized something was wrong.

The day was Christmas Eve, the year was 2003 and the Ketelhohns were resting and watching a movie in their home near Milwaukee, Wisconsin. It was an idyllic evening, but their youngest daughter, 8-month-old, Kate, had a slight fever. It was the type of malady that many children experience throughout their development. There was no reason to worry, until there was.