Ethan Johnson was diagnosed with a rare condition as an infant. His parents were told he may never walk without assistance. Now seven years old, not only does he walk, he flies out on the ice. Read Ethan's story here.

Figuring out if your child has a rare disease is a concerning and challenging puzzle for parents.Two members of the Gillette team, pediatric neurologists Randal Richardson, MD, and Jamie Eskuri, MD, say finding answers and guiding families through a rare disease diagnosis and care plan is one of the most rewarding parts of their jobs.

Gillette Children's is known worldwide for its expertise in caring for children diagnosed with rare diseases. Gillette complex care pediatrician, Arthur Beisang, MD is part of the team devoted to providing excellent care and improving the lives of children living with a rare disease.

Ear, nose and throat issues are the number one concern prompting parents to see their child’s pediatrician. February is Kids’ ENT Health Month. At Gillette Children's our ENT specialists understand the unique needs of children and teens who have disabilities, complex conditions or serious issues.

On January 5, Amer and his son Ismail, 4, were out sledding on the hill just minutes from their home in St. Louis Park. It was a small hill, but there were a few trees at the bottom. On Ismail's final run of the day, what began as a fun outing turned into any parent's nightmare.

In light of current guidelines that determine who is eligible for vaccine prioritization, Gillette reached out to Minnesota Governor Tim Walz and Commissioner Jan Malcom to urge them to consider the inclusion of people who have disabilities.

When Isabella Gregory, 11, received a diagnosis of juvenile idiopathic scoliosis in 2019, it was a shock to say the least. Read about the unique surgical procedure that got Isabella back to her life and activities just 6 weeks later.

At the 2021 Annual Meeting of the International Perthes Study Group (IPSG), organizers announced that Gillette is second in the world in its enrollment of Perthes patients into IPSG studies.

A new survey hopes to provide a better understanding of the challenges to health care access for Minnesota families as they care for a child who has a rare disease. One in ten Minnesotans are living with a rare disease. Gillette Children's is known worldwide for its expert level of care for children who have rare diseases and is encouraging participation in the Rare Disease Healthcare Access Study.