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gillette STORIES

The stories of Gillette patients, families and team members who inspire and inform.

Home / Kids Health Matters / Archive: 02, 2022
Rare Conditions

Researching Rare Diseases at Gillette Children’s

Gillette Children's is known worldwide for its research and expertise in caring for children diagnosed with rare diseases such as spinal muscular atrophy (SMA), acute flaccid myelitis (AFM), Legg-Calve Perthes disease, Prader-Willi syndrome, Rett syndrome, and other conditions.
Feb. 28, 2022
Innovation and Research

Rare Disease Awareness and Care

Gillette Children's is known worldwide for its expertise in caring for children diagnosed with rare diseases. Several Gillette providers are participating in an event at the University of Minnesota to talk about the successes and challenges in caring for rare disease disorders. Linda Krach, MD, is a Gillette rehabilitation medicine physician and a keynote speaker at the U of M event. Krach recently won a prestigious award for her work and is part of a team helping patients who have spina bifida and other rare diseases.
Feb. 24, 2022
Community

How Our Music Therapy Program Helps Children Cope With Hospital Stays

Music therapy helps manage pain, helps a child adjust to a hospital environment, provides positive emotional experiences, and promotes comfort and relaxation.
Feb. 23, 2022
Bones

What is a Rare Disease? A Closer Look

Rare Disease Day is Feb. 28, 2022. The main objective of the day is to raise awareness about how rare diseases have an impact on people’s lives and our communities. Gillette Children's is known worldwide for its expertise in caring for children diagnosed with rare diseases such as Rett syndrome, spinal muscular atrophy (SMA), acute flaccid myelitis (AFM), Legg-Calve Perthes disease, Prader-Willi syndrome and other conditions.
Feb. 22, 2022
Community

Why Adaptive Skiing Matters

The 12th Annual Gillette Children's Adaptive Ski Day was an opportunity for children who have disabilities to discover the thrill of downhill skiing. Marcie Ward, MD, is a Gillette pediatric rehabilitation medicine physician and says these adaptive sports events bring joy and can transform children and families.
Feb. 17, 2022
Cerebral Palsy

How to Talk to Family and Friends About Your Child’s Cerebral Palsy Diagnosis

Learn how to have conversations with family and friends about your child's recent cerebral palsy diagnosis and how they can help.
Feb. 16, 2022
Cerebral Palsy

Welcome to the Everybody Club

“The Everybody Club” is a book about love. It easily could have been a book about grief, heart break and the struggles in life. But that’s not what author Linda Hayen and her daughter Carissa wanted to put into the world. Linda Hayen, is the mother of a Gillette patient and says it's joyful, colorful story about inclusion that's based on the relationship between her daughter and son.
Feb. 14, 2022
Brain

A Family Helps Gillette Patients Celebrate Valentine’s Day

Lucia Lazarus was only 5 years old when she had to have surgery at Gillette. She was devastated to learn she would miss Valentine's Day celebrations at school. But child life specialists at Gillette made sure she felt the love while in their care. Because of the dedication of the Gillette staff, Lucia's family worked to find ways to pay it forward. Now they make Valentine's Day bags for Gillette patients and help amplify the work of our researchers studying the use of Virtual Reality to help Gillette patients manage pain and anxiety.
Feb. 11, 2022
Innovation and Research

What Are Augmentative and Alternative Communication (AAC) Devices?

Augmentative and Alternative Communication devices are part of a child's communication system, ranging from choice boards to iPad apps.
Feb. 9, 2022
Pediatrics

Why Dental Care is a Concern

February is National Children’s Dental Health Month. Oral disease is the top unmet health issue for children who have special needs. The dental clinic at Gillette Children's is one of only three facilities in the metro area that is specially equipped to serve patients who have disabilities.
Feb. 8, 2022
Movement

Gillette Helps Athletes with Paralympic Dreams

Gillette Children's provides support and resources to help kids achieve their athletic goals. Our therapeutic recreation specialists take pride in helping kids improve their strength and flexibility while having the fun experience of playing sports.
Feb. 3, 2022
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